How long COVID ruined my life (and why it won't go away)
#longcovid #mecfs #symptoms #news #therapy
Personal Experiences with Long COVID
- Roland Manthorpe's Struggle: Roland, a technology correspondent for Sky News, shares his debilitating experience with long COVID, which includes severe fatigue, brain fog, and a loss of concentration that has lasted for 18 months, affecting his work and daily life.
- Victoria's Story: A young girl named Victoria shares her experience, which includes needing a wheelchair for mobility and struggling to attend school more than two days a week. Despite her serious symptoms, she has faced skepticism and a lack of support from healthcare professionals.
The Healthcare System's Response
- Lack of Effective Treatments: Roland explores the healthcare system's response to long COVID, highlighting the lack of effective treatments available and the slow pace of medical research in this area.
- Healthcare Emergency: The video discusses the potential large-scale impacts of long COVID, indicating it as a healthcare emergency with millions affected globally, posing a serious threat to healthcare systems and economies.
The Need for Research and Funding
- Historical Neglect of Similar Conditions: The video draws parallels between the neglect faced by long COVID patients and historical neglect of other conditions like ME-CFS, emphasizing the urgent need for research and funding to understand and address long COVID better.
- Research Disparity: It highlights the disparity in research funding for ME/CFS compared to other long-term medical conditions, pointing out a missed opportunity for developing effective treatments due to lack of interest and funding over many years.
Therapies and Treatments Mentioned
- Graded Exercise Therapy: Roland discusses the advice given by a GP to gradually increase physical activity, a suggestion that felt wrong to him based on his experiences with physical exertion leading to collapse.
- Self-Medication and DIY Treatments:
- Hyperbaric Oxygen Therapy (HBOT): Roland tried using a hyperbaric chamber to increase the oxygen supply to his brain, a therapy based on the belief that long COVID results in insufficient oxygen reaching the brain. This therapy involves a chamber where the pressure is altered to help more oxygen get into the blood and brain.
- Pills and Medications: Roland shares that he tried various pills and medications to treat long COVID, but none worked for him. He warns viewers against self-medicating without proper medical advice.
- Health Coaching: Roland found significant help through health coaching, which helped him manage his symptoms better by teaching him to pace his activities properly and not take on too much.
Coping and Living with Long COVID
- Cautious Optimism: Despite the significant limitations imposed by the condition, Roland expresses cautious optimism, noting that with careful management of his symptoms, he has been able to find a way to live with the condition.
- Plea for Support: The video ends with a plea for greater understanding and support for long COVID sufferers, emphasizing the importance of societal awareness and help for those affected.